What a week! On Thursday, July 8th, Phoenix had surgery to repair Hypospadias and a mild curvature due to the Hypospadias. As we were preparing for surgery the Anesthesiologist came in and asked if he had any complications with his Spina Bifida?! Apparently during his X-ray back in May (he had this done with a couple of other tests to prepare for the surgery) they saw that he had Spina Bifida Occulta. Click HERE for more info on Spina Bifida Occulta.
We have noticed some things about Phoenix but when I read more about SBO things started to fall into place. Many of you have noticed his poor posture due to a curvature in his spine, he also has an unusual mole where the curvature starts. He has a tendency to vomit easily (which many of you have witnessed!), is often constipated, and his eyes have a tendency to become lazy when he is tired. His gagging and lazy eyes have progressively improved with time so we are hoping that he will eventually grow out of them completely.
At the very least (which we are hoping and praying for) Phoenix will need to wear a brace and do some Physical Therapy to improve his posture. As he is older we will find if he is going to have any Neurological problems...bladder and bowel control, leg pain, etc. This we DO KNOW...Phoenix has continually reached all of his milestones; he crawls, pulls up, walks along the furniture and it getting ready to walk very soon. He is so sweet, he babbles, claps, kisses, plays peek-a-boo, and laughs...ALOT! Right now we are overwhelmed but we know how blessed we are...so many people would love for their children to do the things that Phoenix is already doing! Please keep us in your prayers, right now our focus is making sure Phoenix is fully recovered from his surgery and then we will start the process of referrals and specialists. I leave you with this:
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7 comments:
Praying for Pheonix, Andrea. We love ya'll.
Phoenix is so precious! I know this is all so overwhelming right now. Your post was helpful in addressing your concerns, to family and yourself. You will do what is the best for Phoenix, as you let the Lord guide you. You are so blessed that we have this amazing suppot right here in our Church family and community!
I love you all!
Lots of prayer for sweet little Pheonix and your family. He is so blessed to have such loving and caring parents. Jesus is in control of everything, so please do your best not to worry. Love you guys!
YES ANDREA, Phoenix is so precious! Remember that our Lord will not give us more than we can handle. You have an amazing husband that takes such good care of you and the children. You are truly blessed! We don't always understand things in our life, but remember that the Lord is control.
We are praying for Phoenix and your family! He is such a sweet little guy and I know that God has big plans for his life!
I loved the video...what a happy little boy! Phoenix is always smiling every time I see him. You and Steve are both sweet, loving, compassionate, smart, and really good parents! The Lord has already wonderfully equipped you for this new journey.
Prayers and love.
Love that sweet baby so, so much!!
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